The Burden on Patients/Families When a Child Takes Multiple Medicines
Research type
Research Study
Full title
A Qualitative Study to Explore How the Day to Day lives of Patients and their Families are Affected when Children and Young People take Regular Medicines
IRAS ID
213615
Contact name
Jeff Aston
Contact email
Sponsor organisation
Aston University
Duration of Study in the UK
0 years, 6 months, 0 days
Research summary
Taking medicines has been shown to place a burden on the lives of adult patients. This includes the medicines taking regime, the need to self-adjust how medicines are taken, travelling with medicines, reliance on support from family members and negotiating the healthcare system to obtain medicines. The burden of taking medicines may impact on the patient’s ability to take them. Little is known about the burden placed on the lives of children and their families when a child takes regular medicines. This project has been set up to identify the burden that taking medicines places on a patient, and their family, when children and young people are prescribed regular medicines.
The parents of in-patients aged up to 16 years, and patients aged over 16 years, at Birmingham Children’s Hospital who routinely take prescribed medicines at home will be recruited in to the study. They will be interviewed by the study researcher to determine the impact that medicines taking places on their lives. They will asked about their daily regime of taking medicines, their experience of taking different types of medicine, side effects, interaction with the healthcare system about medicines and the impact on social activities such as taking a holiday.
The information obtained from the study will further enable us to consider the types of medicines that patients are prescribed and how the impact that they have on patients and their families’ lives may be minimised.
REC name
West of Scotland REC 3
REC reference
17/WS/0038
Date of REC Opinion
16 Mar 2017
REC opinion
Further Information Favourable Opinion