TEMPO (remoTE tiMed uP and go in people with HaemOphilia)
Research type
Research Study
Full title
Examination of the acceptability of digitalisation of the Timed Up and Go test for remote assessment in people with haemophilia.
IRAS ID
339216
Contact name
Kate Button
Contact email
Sponsor organisation
Cardiff University
Duration of Study in the UK
0 years, 7 months, 31 days
Research summary
This study aims to look at the acceptability and ease of using software that measures how you move in the individual's home whilst performing a simple activity. This activity is the timed up and go (TUAG) which is used to assess mobility and balance. It involves the individual standing from a chair, walking 3m, turning and returning to the chair, using any walking aids needed. The individuals will then be asked for feedback on how they felt using the technology at home. These will be through an interview. This will be used to determine if this could be a suitable way to measure and monitor the falls risk in people with Haemophilia (PWH) in further research from their own home.
With advances in healthcare, age expectancy of PWH has risen. Age-related changes are now present in this population including frailty, reduced balance and fear of falling. Falls are more prevalent in this group of people and can have more serious consequences as a result of traumatic bleeding. It is important to try and reduce the risk of falls in this population, however there is no agreement on how to measure or monitor the risk of falls.REC name
London - West London & GTAC Research Ethics Committee
REC reference
24/PR/0530
Date of REC Opinion
21 May 2024
REC opinion
Further Information Favourable Opinion