Technologically-enabled epilepsy care V1
Research type
Research Study
Full title
Technologically-enabled epilepsy care (Case 6 - Studies in Co-creating Assisted Living Solutions research programme)
IRAS ID
229087
Contact name
Trisha Greenhalgh
Contact email
Sponsor organisation
University of Oxford
Duration of Study in the UK
2 years, 0 months, 1 days
Research summary
This project is part of a large research programme looking at different areas of assisted living technologies and their integration in particular service models for a range of health conditions (Studies in Co-Creating Assisted Living Solutions – SCALS). This case study focuses on how people living with epilepsy use technologies to manage their condition and how these technologies can be better embedded in the health service to improve care. We will study the use of a specific system currently under development by a private/public consortium that aims to bring together wearable devices, smartphone apps, shared care records, information visualisations and machine learning in one integrated system. Our aim is to gain a rich understanding of participant experiences using and developing this system so that it works in ways that prove to be useful, purposeful and ethical for all those involved. We will aim to illuminate the challenges of achieving technologically-enabled epilepsy care and develop approaches to co-designing technologies in ways that meet peoples’ needs. The case study will be driven by participatory action research principles and will use ethnographic methods: interviews with patients, carers, health professionals and technology developers; ethnographic observation of technology use and interaction in the epilepsy clinic; collection of photos, videos and documents; and co-design workshops. The case study will be led by the University of Oxford and is funded by the Wellcome Trust and the Academy of Medical Sciences.
REC name
London - Harrow Research Ethics Committee
REC reference
17/LO/1731
Date of REC Opinion
12 Dec 2017
REC opinion
Further Information Favourable Opinion