Symptom appraisal and help seeking in potential endometrial cancer

  • Research type

    Research Study

  • Full title

    Exploring the factors that influence symptom appraisal and help seeking behaviour in women with gynaecological symptoms

  • IRAS ID

    245458

  • Contact name

    Emma Crosbie

  • Contact email

    emma.crosbie@manchester.ac.uk

  • Sponsor organisation

    The University of Manchester

  • Duration of Study in the UK

    2 years, 5 months, 0 days

  • Research summary

    Womb cancer is the most common gynaecological cancer in the UK. If diagnosed early, women have an excellent prognosis, but 1 of women present with advanced disease with 5-year survival rates of just 15%.

    The majority of women with womb cancer will experience symptoms such as abnormal vaginal bleeding when the tumour is small, or even in its pre-cancerous phase. However, most women delay visiting their GP for at least a month; others do not consult their GP at all and are diagnosed as an emergency.
    Potential barriers to seeking help include embarrassment, a lack of awareness of symptoms, a lack of willingness to be examined/to examine, reluctance to be referred for investigations and the intrusive nature of diagnostics. However, these have never been studied before. Delayed help seeking behaviour adversely affects clinical outcomes in most cancer types but it is unclear whether this delay has an impact on the stage of disease at diagnosis or extent of treatment related morbidity for women with womb cancer.
    We want to gain a better understanding of whether women who delay seeking help from their GP have more advanced disease when diagnosed and why these women delay seeking help from their GP. We will ask women with womb cancer about the symptoms they experienced and when they saw their GP through a written questionnaire. We will then invite a subgroup of women to participate in an in depth interview to explore factors that affect women’s recognition of red flag symptoms in womb cancer (symptom appraisal) and decision to access medical care (help seeking behaviour).

    Understanding the barriers to help seeking behaviour is fundamental to improving outcomes from womb cancer and informing meaningful improvement initiatives.

    This research is funded by NIHR and will be recruiting participants from St Mary's Hospital and Trafford General Hospital.

  • REC name

    North West - Greater Manchester South Research Ethics Committee

  • REC reference

    20/NW/0142

  • Date of REC Opinion

    17 Mar 2020

  • REC opinion

    Favourable Opinion