Supporting children and young people to live well with coeliac disease

  • Research type

    Research Study

  • Full title

    Development and feasibility of a self-help psychological intervention to support gluten-free diet management, psychological wellbeing and quality-of-life in children and young people with coeliac disease.



  • Contact name

    Rose-Marie Satherley

  • Contact email

  • Sponsor organisation

    University of Surrey

  • Duration of Study in the UK

    0 years, 11 months, 23 days

  • Research summary

    Management of a strict, gluten-free diet is essential for children and young people (CYP) with coeliac disease, but this can negatively impact psychological wellbeing and quality of life. Despite calls from families, clinicians and researchers, psychological support is not routinely available for these families. This is surprising, given the mounting evidence for self-help psychological resources (e.g. guided self-help books, websites) in supporting the self-management, and wellbeing, of a range of long-term conditions.

    This project proposes to adapt existing psychological interventions, to be relevant and helpful for families living with coeliac disease. First, we will work with families and clinicians to adapt existing self-help interventions for coeliac disease. Next, we we will run a feasibility randomised controlled trial. This feasibility study will help us find out if we can run a larger project, how many parents we need to recruit and how long the larger project will last.

  • REC name

    West of Scotland REC 5

  • REC reference


  • Date of REC Opinion

    9 Aug 2023

  • REC opinion

    Further Information Favourable Opinion