Supported self-management for follow-up care in gynaecological cancers
Research type
Research Study
Full title
Supported self-management in the follow-up care of women treated for Stage I endometrial and ovarian cancer: a feasibility study
IRAS ID
206083
Contact name
Maria Kyrgiou
Contact email
Sponsor organisation
Imperial College London/Imperial College Healthcare NHS Trust
Duration of Study in the UK
0 years, 11 months, 31 days
Research summary
After treatment for endometrial (womb) or ovarian cancer, women attend hospital outpatient clinics at regular intervals over a number of years. Almost 7 in 10 women diagnosed with endometrial cancer survive for 10 years or more. Women treated for early stage ovarian cancer also have a very good prognosis; 9 out of 10 are alive 5 years from diagnosis. Increasing numbers of patients attend busy hospital clinics with questionable value to patients and the NHS. Women usually report symptoms of recurrences of gynaecological cancer between hospital appointments. New approaches to follow-up have been called for, with patients taking more responsibility for their own health care. The National Cancer Survivorship Initiative called for the implementation of a Recovery Package,which includes holistic needs assessment, verbal and written information on self referral back to hospital and signs and symptoms of recurrence, a health and wellbeing educational event to support patient self-management, and a cancer care review in primary care. We intend to carry out a small feasibility study over 12 months to investigate if patients feel the components of their personalised Recovery Package are sufficient for their needs if they are discharged from hospital based follow-up and transferred to primary care. We will ask patients to forego 1-2 outpatient appointments, and assess the suitability of their Recovery Package by asking patients to complete questionnaires at the beginning and end of the study and to consent to a telephone interview to explore their views. At the end of the study all patient participants will be offered a hospital outpatient appointment with a clinical examination and will be asked if they wish to continue with supported self-management using their Recovery Package or return to hospital based follow-up. Key NHS staff will be interviewed to identify perceived barriers and facilitators to implementing supported patient self-management.
REC name
North West - Preston Research Ethics Committee
REC reference
16/NW/0434
Date of REC Opinion
16 Jun 2016
REC opinion
Further Information Favourable Opinion