Support needs of carers of adults with ID and dementia
Research type
Research Study
Full title
Support needs of professional and family carers of adults with intellectual disabilities and dementia. Throughout diagnostic assessment and beyond.
IRAS ID
330742
Contact name
Dave Dagnan
Contact email
Sponsor organisation
Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust
Duration of Study in the UK
0 years, 9 months, 29 days
Research summary
Family and paid carers of adults diagnosed with intellectual disabilities will be invited to participate in an interview about their caring experiences. Multi-perspectival Interpretative Phenomenological Analysis (M-IPA) will be utilised to analyse transcripts, with the expectation that family and paid carers, while differing in specific experiences, will be “surfing the same wave”. Participants will be recruited from the open caseloads of one NHS specialist learning disability service, and necessary NHS research ethics committee, and specific Trust Research and Development (R&D) governance approvals will be sought.
Dr Fish will provide methodological oversight. Dr Hudson will provide specific methodological support in the implementation of an M-IPA study. Professor Dagnan will have overall oversight of the project and fulfil the role of Chief Investigator.
REC name
London - Surrey Research Ethics Committee
REC reference
26/LO/0028
Date of REC Opinion
17 Feb 2026
REC opinion
Further Information Favourable Opinion