Substance Use and End of Life Care
Research type
Research Study
Full title
Will a New Model of Care for People for people with End Of Life Care Needs who use Substances Improve their Access to and Experience of End Of Life Services?
IRAS ID
275107
Contact name
Sarah Galvani
Contact email
Sponsor organisation
Manchester Metropolitan University
Duration of Study in the UK
2 years, 4 months, 3 days
Research summary
This research aims to:
1. Develop and implement a new, co-produced, integrated model of care in partnership with people with experience (PWE) (our preferred terminology for patients), FFCs and professionals.
2. Establish whether people receiving the new model of care, and their families, have an improved experience of care.
3. Establish whether people in need of care but who sit outside of services are more able to access services.
4. Determine whether the professionals working with PWEs and FFCs feel better supported by the new model.To meet these objectives, we are putting people with experience at the centre of the research and adopting a participatory approach to our research. Participatory Action Research is a way of researching in partnership with a range of people with different expertise from the outset. It is driven by all the participants, not the researchers alone. It is used when the intention is to benefit people directly through changes or improvements in care (Pain et al. 2012). We will also be working closely with a unique conglomeration of social and health care agencies working in substance use (SU) and end of life care (EoLC) services in Liverpool, including Mersey Care NHS Trust, Addaction, and Marie Curie.
What the new model of care looks like will be decided by all research partners. However, the partners may consider recommendations from our recent research including improved care pathways, more collaborative working and better training of professionals. We will use a pre- and post-intervention design using mixed methods to determine early indications of its effectiveness.
We will co-create dissemination routes with our PWE colleagues to ensure maximum impact and reach of the research project, through reports, articles, social media and conference presentations. A Briefing document targeting social care and health professionals and one targeting policy makers will also be circulated widely using national and international SU and EoLC networks.
REC name
West Midlands - Coventry & Warwickshire Research Ethics Committee
REC reference
20/WM/0140
Date of REC Opinion
1 Jun 2020
REC opinion
Favourable Opinion