Study with New Medicine, called Odevixibat, in Patients with Alagille

  • Research type

    Research Study

  • Full title

    An Open Label Study to Evaluate the Long-term Safety and Efficacy of Odevixibat (A4250) in Patients with Alagille Syndrome (ASSERT-EXT)

  • IRAS ID

    302546

  • Contact name

    Alastair Baker

  • Contact email

    alastair.baker@nhs.net

  • Eudract number

    2021-000996-36

  • Clinicaltrials.gov Identifier

    IND Number, 145988

  • Duration of Study in the UK

    3 years, 0 months, 22 days

  • Research summary

    Albireo AB is developing the investigational drug (also known as the “study drug”) odevixibat as a possible treatment for itching associated with Alagille Syndrome (ALGS).
    The study drug is believed to lower bile acid levels in the blood and liver by reducing uptake of bile acids from the intestine to the liver. Lowering bile acid levels may lead to decreased itching. Odevixibat has been tested in healthy volunteers and in a study in children (aged 6 months old or older) with liver diseases and elevated bile acids, including ALGS patients.
    The main purpose of this study is to learn how safe and effective the study drug is long-term. This study will take place in approximately 35 centres globally with up to approximately 60 children or adults with ALGS. The study is divided into a 72 week treatment period and a 4-week follow-up period.

  • REC name

    London - Central Research Ethics Committee

  • REC reference

    21/LO/0592

  • Date of REC Opinion

    30 Nov 2021

  • REC opinion

    Further Information Favourable Opinion