Stroke patient portal usability testing v1.0
Research type
Research Study
Full title
Usability study of a patient data portal for stroke survivors
IRAS ID
341961
Contact name
Iain Marshall
Contact email
Sponsor organisation
King's College London
Clinicaltrials.gov Identifier
175354, EDGE
Duration of Study in the UK
0 years, 9 months, 1 days
Research summary
Stroke has been a leading cause of death and disability in the UK, with 90,000 people experiencing a stroke every year. There remains a lack of effective strategies to support stroke survivors, carers, and their families in making informed decisions regarding health-related self-management in the long term.
This study is part of a larger NIHR-funded research programme “Improving the lives of stroke survivors with data”, which aims to improve the lives of stroke survivors through innovation in the data we collect on stroke, how we analyse it, and how clinicians, patients, and healthcare managers use the data to support and manage stroke care. The South London Stroke Register (SLSR) is a prospective cohort study of stroke survivors, which has been running continuously since 1995 and follows up >2,000 stroke survivors with interviews at 3 months and then annually for the first five years following the stroke. The study collects a wealth of data, including on stroke severity, functional recovery, mental health post-stroke, and quality of life. Until now, participants had no easy way to access this data.
The present study will evaluate the user-friendliness and efficiency of a patient portal tailored for stroke survivors. This patient portal is a website system that allows stroke survivors to access personal health records and track their health progress. This study has two parts:
1 A qualitative evaluation of how participants registered with the South London Stroke Register (SLSR) interact with the patient portal system. This assessment will focus on understanding user needs, behaviours, and preferences.
2 A quantitative study of participants’ interactions with the patient portal system, including task completion rates, time efficiency, and the frequency of user errors. This will offer a detailed understanding of the portal’s operational efficiency and highlight specific areas for enhancement.REC name
North East - Tyne & Wear South Research Ethics Committee
REC reference
25/NE/0019
Date of REC Opinion
20 Jan 2025
REC opinion
Favourable Opinion