Story Bug - your story of antibiotic resistance V1

  • Research type

    Research Study

  • Full title

    Story Bug - your story of antibiotic resistance (telling stories of personal experiences of antibiotic resistance to help improve communication of the concepts of antimicrobial resistance (AMR) to the public)

  • IRAS ID

    320334

  • Contact name

    Becky McCall

  • Contact email

    becky.mccall.18@ucl.ac.uk

  • Duration of Study in the UK

    1 years, 8 months, 1 days

  • Research summary

    Summary of Research
    Antibiotics have been a mainstay of medicine since the discovery of the first antibiotic, penicillin, in 1928. The subsequent development of antibiotics to treat infection has underpinned much of the routine surgery and medical practice we receive today, e.g. cancer operations and chemotherapy, Caesarean sections, and treatment of mild to serious respiratory diseases, to name a few. Many diseases and surgical procedures would be too dangerous without antibiotics.

    -However, bacteria naturally develop resistance, and this is accelerated by overuse and mis-use of antibiotics. This means that an increasing number of diseases – caused by resistant bacteria – are untreatable, with potentially fatal consequences. Indeed, around 1.2m deaths occur each year due to antimicrobial resistance globally.

    -With very few new antibiotics being developed, there needs to be greater understanding on how to control the use of those antibiotics that still work. Changing prescribing practices is one part of the solution, but communicating the right, constructive messages around antibiotic use and the development of antibiotic resistance and making those message real and relevant is important too.

    -This project comprises a 2-day workshop or one-to-one digital storytelling (DST) production process with 5-6 people, or a close relative's experience of AMR. After stories have been created and the process evaluated via discussion with storytellers, the digital stories (4-5 min duration) will be screened to a small gathering of new participants who will discuss the meaning and impact of these stories with respect to AMR. The discussion will be recorded and will provide research data for analysis for Becky McCall's (BM) PhD project. With storyteller permission, digital stories might be made available to any patient organisations or NHS Trusts who aided recruitment.

    Summary of Results
    The StoryBug study creted 5 digital stories, co-created with people who had experiences antibiotic resistant infections or antibiotic adversity. Interviews were conducted with the storytellers and digital stories were shown to a small group of the public and a discussion recorded to provide primary data. The storytellers found the process positive with comments reflecting the a sense of relief in representing their experiences in a 4 minute video that they made themselves. Viewers felt the the digital stories resonated on an emotional level and illustrated the serious and sometimes life-theatening need of some patients for antibiotics, closing the psychological distance between perceptions of AMR and reality. See https://eur03.safelinks.protection.outlook.com/?url=https%3A%2F%2Ftrack.pstmrk.it%2F3ts%2Fstorybug.org.uk%252F%2FNBTI%2Ft8C9AQ%2FAQ%2Fbe7dc732-9825-4d2c-8342-5e85de05516c%2F1%2F7Md4KqKjoJ&data=05%7C02%7Capprovals%40hra.nhs.uk%7C5dbb7cf6986e49cc64bf08dda1f61f1c%7C8e1f0acad87d4f20939e36243d574267%7C0%7C0%7C638844800676348931%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C&sdata=Bemoo2VzsUikGnXumT%2BU3mZXwDzvRt0TIB9x%2BlucJZc%3D&reserved=0 for the stories and some more context on the study findings

  • REC name

    West of Scotland REC 5

  • REC reference

    23/WS/0059

  • Date of REC Opinion

    5 Apr 2023

  • REC opinion

    Favourable Opinion