SSPOTS: Self-management Support in POTS (Phase 1) V2

• Research type

  Research Study

• Full title

  Self-Management Support in people with Postural Orthostatic Tachycardia Syndrome (POTS): Co-producing a supportive self-management intervention and testing for feasibility. Phase One: The experience of POTS

• IRAS ID

  281841

• Contact name

  Helen Eftekhari

• Sponsor organisation

  University of Warwick

• Duration of Study in the UK

  3 years, 0 months, 4 days

• Research summary

  Postural orthostatic tachycardia syndrome (POTS) is a common condition, affecting about 1 in 500 people. In POTS there is a very high heart rate when standing up. POTS affects 5 times more women than men and is usually diagnosed between the ages of 17-35. People with POTS have difficulty standing for long times because of the abnormally high heart rate making them dizzy, tired, lightheaded, faint and they may have difficulties concentrating. This often has a devastating effect on quality of life. Patient groups report most people take on average 2 years to understand and come to terms with their condition, and feel unsupported in managing their POTS. The overall aim of this study is to develop a self-management support intervention for POTS in three phases. This application is for part one of the study aiming to gain an insight into the POTS experience. This will be a qualitative study, using interviews with up to 30 with people with POTS and up to 30 interviews with health care professionals. POTS participants will be recruited from 6 POTS centres in the UK and health care professionals from across the UK. The results will inform the future development of a POTS self-management programme.

• REC name

  London - Chelsea Research Ethics Committee

• REC reference

  21/PR/0397

• Date of REC Opinion

  25 Jun 2021

• REC opinion

  Further Information Favourable Opinion