South Asian carers managing dementia transitions v1.0
Research type
Research Study
Full title
Caring for complex needs: How do South Asian families cope with changes in care needs of a relative with moderate to severe dementia related behaviours
IRAS ID
236233
Contact name
Mohammed Akhlak Rauf
Contact email
Sponsor organisation
University of Bradford
Duration of Study in the UK
0 years, 8 months, 0 days
Research summary
There are increasing numbers of South Asian older people in the UK, as this group ages (APPG, 2013). Old age health and social care needs may give rise to behavioural distress. Increased likelihood of dementia may create additional difficulties for the person with dementia and their carers; including due to stigma and double/multiple jeopardy (Bamford, 2014, Parveen et al 2016, Katbamna et al 2004)
This PhD research study is working to ‘understand how South Asian family carers of a relative with dementia cope with the dementia related transitions’. Transitional changes (identified in a previous study) will be further examined in light of any social, religious or cultural influences impacting on coping with these changes - such as family dynamics, cultural perspectives and values (including faith) and access (or lack of) to service provision.
Participants will be recruited through flyers put up in community centres, South Asian dementia projects known to the researcher and a GP Practice has expressed an interest to be a site to help publicise and recruit participants.
I will seek to interview the family carers face to face over a period of 6 months (month 0, 2, 4 and 6), semi-structured interviews (or by phone if necessary) to assess coping strategies. Accounts of coping with recent or ongoing transitions will give a more detailed explanation of what is going on and how the carers are coping with or managing the transitions. The project will be open to current South Asian carers in Britain currently caring for a relative living with moderate to late stages of dementia.
It is hoped that a detailed understanding of coping strategies will enable recommendations on how services (and family members) can assist carers to better cope with caring for a relative with dementia.
REC name
Wales REC 7
REC reference
18/WA/0090
Date of REC Opinion
7 Mar 2018
REC opinion
Favourable Opinion