South Asian Asthma Self-Management
Research type
Research Study
Full title
Exploring the role of Bangladeshi and Pakistani culture on asthma self-management behaviour: Patient and healthcare perspectives (Qualitative and intervention development study).
IRAS ID
200955
Contact name
Salina Ahmed
Contact email
Sponsor organisation
Queen Mary University of London
Duration of Study in the UK
1 years, 2 months, 0 days
Research summary
UK born South Asians have greater cultural differences such as a different lifestyles and asthma support needs, as they have better language abilities, education and employment compared to the first generation who migrated to the UK. But they still find it difficult to manage their own asthma suggesting:
1) Asthma needs self-management.
2) Interventions need to be culturally tailored (i.e. taking into account an individual’s culture) in Western countries.
3) We need to understand how to help people from different South Asian subcultures (e.g. Bangladeshis and Pakistanis) and generations to look after their asthma better, while considering cultural changes in the UK, e.g. acculturation (i.e. cultural changes influenced by coming in contact with another culture) and cultural hybridity (i.e. cultural abilities gained from being a part of two or more cultures).For the qualitative study (phase 1) we propose to -
1) Conduct semi-structured interviews with up to 38 South Asians (Bangladeshi and Pakistani) across different generations (first, second and third) on how they look after their asthma.
2) Use patient interview data to identify relevant healthcare/other professionals significant to patient care and then explore up to 10 healthcare/other professional perspectives and challenges of providing asthma self-management support to these patients.Participants who cannot read, write or speak in English will be given a translated audio recorded patient information sheet and a recorded verbal consent will be taken.
For the intervention development study (phase 2), we aim to –
1) To design, develop and refine a prototype asthma self-management intervention that is culturally relevant for South Asians, using evidence based findings from the qualitative study, with a working group of up to 10 South Asians (5 Bangladeshi and 5 Pakistani) and up to 6 relevant healthcare professionals using structured questions.All participants will be recruited using a purposeful sampling from mixed settings. Data will be analysed using thematic analysis.
REC name
Yorkshire & The Humber - South Yorkshire Research Ethics Committee
REC reference
16/YH/0524
Date of REC Opinion
11 Jan 2017
REC opinion
Further Information Favourable Opinion