SNOFLAC-MS
Research type
Research Study
Full title
Scoping the Needs of Families and Carers of People Living with Multiple Sclerosis
IRAS ID
209078
Contact name
C Bulley
Contact email
Sponsor organisation
Queen Margaret University
Duration of Study in the UK
0 years, 9 months, 0 days
Research summary
The Multiple Sclerosis (MS) Society wishes to explore the needs and unmet needs of families and carers of people living with MS. This qualitative study aims to explore the services and interventions that work for different people, in different circumstances and establish when they are most beneficial. The results will allow the researchers to make recommendations to the MS Society about what type of support carers need, how best to provide this and future priorities for research. Therefore, this study will directly influence the development of services by the MS Society and may be used to influence other agencies or organisations who, in turn, may also improve their support.
A maximum of 20 family members or carers of people living with MS will be recruited for face-to-face interviews via an NHS Consultant in Rehabilitation Medicine, an NHS Consultant in Clinical Neurosciences and an NHS Carer Support Officer. Eligibility will be based on being a family member or carer of an adult living with MS. Interviewees will be required to be over 18 years old and fluent enough in spoken English to be understood. They will be asked to take part in an interview, lasting up to an hour, at a place and time convenient to them. The interview will be digitally recorded and transcribed. The data will be fully anonymised and the participant will be given the opportunity to receive a summary of their interview.REC name
London - Chelsea Research Ethics Committee
REC reference
16/LO/1194
Date of REC Opinion
23 Jun 2016
REC opinion
Favourable Opinion