Sleep disordered breathing in children with neuromuscular disease

  • Research type

    Research Study

  • Full title

    Inflammation in children with sleep disordered breathing secondary to neuromuscular disease

  • IRAS ID

    187418

  • Contact name

    Hui-leng Tan

  • Contact email

    h.tan@rbht.nhs.uk

  • Sponsor organisation

    Royal Brompton Hospital

  • Duration of Study in the UK

    1 years, 0 months, 0 days

  • Research summary

    Children with neuromuscular disease (NMD) are at risk of developing sleep disordered breathing (SDB) because of their muscle weakness. The treatment for this is non-invasive ventilation (NIV). However, currently, there is no international consensus as to when NIV should be started. There is a spectrum of severity of SDB: some children just have a slight increase in the number of dips in their oxygen levels; some have dips in oxygen levels and rises in carbon dioxide levels just during dream sleep (REM sleep); some children under breathe and have high carbon dioxide (waste gas) levels the whole night.

    We know very little about the effects of sleep disordered breathing in children with neuromuscular disease. Research in healthy children with obstructive sleep apnoea (OSA) has shown that OSA can result in inflammation in the blood and airways. This inflammation is thought to be due to the dips in oxygen levels and rises in carbon dioxide seen in OSA. As NMD children with SDB also have similar gas exchange changes, could the SDB be causing inflammation as well? If so, at what severity of SDB is inflammation seen? This may provide valuable information on when NIV should be started.

  • REC name

    London - Brent Research Ethics Committee

  • REC reference

    15/LO/1883

  • Date of REC Opinion

    19 Oct 2015

  • REC opinion

    Favourable Opinion