Sjogren's Syndrome Research Database
Research type
Research Database
IRAS ID
348925
Contact name
Victoria Macrae
Contact email
Research summary
Sjogren's Syndrome Research Database
REC name
North East - Newcastle & North Tyneside 2 Research Ethics Committee
REC reference
24/NE/0218
Date of REC Opinion
9 Apr 2025
REC opinion
Further Information Favourable Opinion
Data collection arrangements
Participants with Sjogren's Disease have provided written consent to store clinical information about their disease on the Sjogren's database. This data is link-anonymised (does not contain identifiable information). It includes information about the patient's disease activity, symptoms, medications and demographics. The research database is linked to the clinical database which allows us to pull the information required without needing to contact the patient again after their appointment. The clinical information is kept within the hospital and anonymised when it the information is transferred to the university. All requests are reviewed by the Chief Investigator, Principal Investigator and steering committee as required.
Research database title
Sjogren's Syndrome Research Database
Establishment organisation
Newcastle University
Establishment organisation address
Translational & Clinical Research Institute
M3.046, Leech Building
Faculty of Medical Sciences
NE4 5PL