SICP: Patient Evaluation Questionnaire
Research type
Research Study
Full title
Serious Illness Care Programme: Patient Evaluation of the Serious Illness Conversation
IRAS ID
214868
Contact name
Alison Coackley
Contact email
Sponsor organisation
The Clatterbridge Cancer Centre NHS Foundation Trust
Duration of Study in the UK
0 years, 6 months, 28 days
Research summary
The Serious Illness Conversation Guide was developed by the Ariadne Laboratory in Boston USA. It is a six point conversation guide which prompts and supports clinicians to speak to patients in the last 12-18 months of life. It assures that the patient may then discuss their wishes, goals and priorities in a structured and supportive way. The use of the Guide in the USA, is demonstrating that meaningful conversations about a patient’s goals and priorities enhance their experience of care, quality of life, and sense of control, as well as reducing depression and anxiety. The Clatterbridge Cancer Centre in collaboration with Ariadne Labs and the Marie Curie Palliative Care Institute has developed an anglicised version of the Guide and the Serious Illness Care Programme UK. The Programme is a fully structured implementation pathway that involves system change, clinician training and monitoring and evaluation. The Clatterbridge Cancer Centre is the national coordinating centre for the UK Programme and is responsible for its governance. NHS England is funding a one-year implementation pilot in the NHS Clatterbridge Cancer Centre will be the lead. NHS England has selected the Airedale, Wharfedale and Craven (AWC) pioneer Yorkshire and the Southend pioneer Essex as the pilot sites for the first phase of the Programme. The Programme itself is a service development initiative, but in order to evaluate the implementation, the Patient Evaluation Survey is to be used. The administration of the questionnaire will give us extremely valuable insight into the impact of the conversation from the patient perspective and assess whether the patients feel this is worthwhile and whether they are satisfied with the conversation.
REC name
North West - Greater Manchester East Research Ethics Committee
REC reference
16/NW/0676
Date of REC Opinion
5 Oct 2016
REC opinion
Favourable Opinion