Sheffield MND Research Database (renewal)
Research type
Research Database
IRAS ID
362564
Contact name
Pamela Shaw
Contact email
Research summary
Sheffield MND Research Database: Access to patients' health records for research purposes
REC name
Yorkshire & The Humber - Sheffield Research Ethics Committee
REC reference
26/YH/0024
Date of REC Opinion
6 Mar 2026
REC opinion
Favourable Opinion
Data collection arrangements
Clinical information is gathered and entered onto health records systems during normal clinical care pathways by the clinical care team. The MND clinical database contains information from clinical records, outpatient clinic visits and clinical studies of MND patients. Details of patients’ disease progression and clinical care are documented on the database and following death will remain on the system for use in research. Data is also stored across other health records systems held across the Trust, for example neurophysiology, imaging, physiotherapy and other allied health teams. Data across all systems is linked via patients’ unique hospital number.
Research programme
The Research Database will support MND researchers in Sheffield and their collaborators. Any outcomes of the research will provide information to improve the care and treatment of MND patients.
Research database title
Sheffield MND Research Database: Access to patients' health records for research purposes
Establishment organisation
Sheffield Teaching Hospitals NHS Foundation Trust
Establishment organisation address
Clinical Research & Innovation Office Sheffield, D Floor
Royal Hallamshire Hospital
Glossop Road, Sheffield
S10 2JF