Sheffield MND Care and Research Centre Database
Research type
Research Database
IRAS ID
293450
Contact name
Pamela Shaw
Contact email
Research summary
Sheffield MND Care and Research Centre Database
REC name
Yorkshire & The Humber - Sheffield Research Ethics Committee
REC reference
21/YH/0093
Date of REC Opinion
14 May 2021
REC opinion
Further Information Favourable Opinion
Data collection arrangements
The database contains information from clinical records and outpatient clinic visits of Motor Neurone Disease (MND) patients. All patients who attend the Royal Hallamshire Hospital will be included on the database. Details of patient disease progression and clinical care is documented on the database.
Research programme
The database will support the MND research community in Sheffield and their collaborators. Any outcomes of the research will provide information to improve the care and treatment of MND patients. Specifically, the areas of research that are covered under this protocol and ethical approval are: - MND-related studies investigating the genetic causes and potential environmental predispositions of the disease. - MND-related studies that will facilitate and support the improvements in clinical care and advance the knowledge of clinicians and researchers in attempting to find new treatments and methods of improving quality of life for MND patients. - Studies looking for specific trends or correlations in the data, aiding in understanding of the disease progression and investigating potential therapeutic benefits or targets for future therapies. - Studies to enable biomathematicians to build probabilistic models that can link clinical data to environmental risk factors and genetic risk factors.
Research database title
Sheffield MND Care and Research Centre Database
Establishment organisation
Sheffield Teaching Hospitals NHS Foundation Trust
Establishment organisation address
Clinical Research & Innovation Office Sheffield, D Floor, Royal Hallamshire Hospital
Sheffield Teaching Hospitals NHS Foundation Trust
Glossop Road, Sheffield
S10 2JF