Shared Decision Making in Rheumatoid Arthritis Care . V1
Research type
Research Study
Full title
SHARED DECISION MAKING: An inductive analysis of rheumatoid arthritis patient and clinician experiences in targeted care from initial diagnosis to first year.
IRAS ID
151928
Contact name
Frances Chilton
Contact email
Sponsor organisation
South Warwick NHS Foundation Trust
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
5 years, 0 months, 30 days
Research summary
The modern management of rheumatoid arthritis [RA] proposes an aggressive strategy involving early treatment and successive rapid escalation in therapy to ensure tight control, crucial to improving patient outcomes.
Research suggests optimal recovery for people with long term conditions could be encouraged through shared decision making (SDM) (Department of health 2008, Oliver 2010) SDM; a therapeutic approach where patient and clinician make decisions together (Elwyn et al (1999) is a concept promoted by Health policy and generally supported amongst health professionals as a care strategy, however evidence indicates it is not routinely applied in clinical practice (Coulter 2011).
Research to date has been of short duration focused on doctor patient consultations and based mostly in primary care settings. There is a paucity of exploration examining patient experiences and perceptions with interdisciplinary clinicians in secondary care.
This study will focus on a rheumatology interdisciplinary approach to SDM within secondary out patient care. Using a qualitative approach it will critically explore the ‘actual lived experiences’ of adult inflammatory arthritis patients who embark on a targeted pathway from initial diagnosis through their initial treatment year. It will provide an in depth understanding of the decisions RA patients need to take and the experiences in their unpredictable recovery journey. This research will offer insight into patients interpretations of SDM from diagnosis, at what points patients feel involved or uninvolved in their treatment pathway and how experiences affect their perception to self manage their condition.REC name
West Midlands - South Birmingham Research Ethics Committee
REC reference
15/WM/0168
Date of REC Opinion
17 Jun 2015
REC opinion
Further Information Favourable Opinion