SENSE-Cog needs analysis questionnaire

• Research type

  Research Study

• Full title

  SENSE-cog questionnaire survey to scope the needs of elderly people living with dementia and sensory impairment

• IRAS ID

  212989

• Contact name

  Lynne Macrae

• Contact email

  fbmhethics@manchester.ac.uk

• Sponsor organisation

  University of Manchester

• Duration of Study in the UK

  0 years, 5 months, 28 days

• Research summary

  Under-treated hearing and vision loss in the elderly costs the EU billions per year. This impact is significantly compounded by the presence of these impairments in people with dementia. Seven in ten Europeans over ten age of 65 suffer either sight or hearing loss. Dementia and cognitive impairment steadily rise over the age of 65 to the point where almost one-third of Europeans’ at the age of 90 are affected. Thus, the overlap amongst sensory and cognitive ill health is substantial and all three impact significantly on each other, resulting in a crucible of 'multi-morbidity'. Despite this, little is known about the needs of this population. We plan to use questionnaire surveys, with both affected individuals and their caregivers, to gain an idea of what aspects of life these people struggle with and the ways in which their suffering could potentially be alleviated.
  The questionnaires will touch on several different topics:
  • Communication difficulties due to hearing loss (HHIE-S)
  • Visual function (LV VFQ)
  • Quality of life (DemQoL)
  • Social and emotional loneliness (de Jong Gierveld)
  • Geriatric depression (GDS)
  • Caregiver burden (BSFC)
  • Physical health (PHQ-15)
  • Caregiver report on cognitive ability in the affected participant (IQCODE)
  • Sociodemographic information
  • Support care needs

• REC name

  North West - Greater Manchester East Research Ethics Committee

• REC reference

  16/NW/0652

• Date of REC Opinion

  28 Oct 2016

• REC opinion

  Further Information Favourable Opinion