Self- reported needs after subarachnoid haemorrhage (SAH)
Research type
Research Study
Full title
Self-reported needs of patients after subarachnoid haemorrhage (SAH)
IRAS ID
165692
Contact name
Sarah Tyson
Contact email
Sponsor organisation
The University of Manchester
Duration of Study in the UK
0 years, 7 months, 31 days
Research summary
Subarachnoid haemorrhage (SAH) is a type of stroke that occurs when blood leaks onto the surface of the brain and affects 10 people in every 100,000 in the UK each year. Survival and recovery have improved over the last 30 years, but we know from recent studies that survivors still experience physical, psychological and social difficulties. Some of these studies have been conducted to measure patient recovery ; and have focused primarily on cognitive (thinking, processing and memory) and emotional issues using clinical assessment tools rather than asking people what they have experienced and whether they have received help and support. In my role as a clinical nurse specialist for patients who have suffered SAH, I am involved in the patient journey from admission to discharge from hospital and beyond, I am therefore aware that patients experience a wide range of difficulties, which are not always captured by clinical assessment tools, and have access to varying levels of advice and support. The aim of this study is to describe the self-reported needs of patients following SAH, both early and late in their recovery, determine how many of these needs remain unmet and also whether they change over time. We will collect this information using a questionnaire, asking two groups of patients who are early (1-2y) and late (3-5y) in their recovery, to indicate whether they have experienced a specified problem and also if they have received enough help and support. They will also have an opportunity to tell us about any other issues not included in the questionnaire. With this information we will be able to inform the wider SAH community of the problems that patient’s report that they experience and whether they received enough help. This may in turn inform the development of services for survivors of SAH post-discharge.
REC name
North West - Haydock Research Ethics Committee
REC reference
15/NW/0937
Date of REC Opinion
15 Dec 2015
REC opinion
Favourable Opinion