Self-Management Programs and Service Transition for Stroke Survivors
Research type
Research Study
Full title
Self-Management Programs and Service Transition for Stroke Survivors: The patients perspective
IRAS ID
135439
Contact name
N Ward
Contact email
Sponsor organisation
UCLH
Research summary
The Problem: The number of stroke patients in the UK is rising. As a result, there will be an increasing demand for stroke rehabilitation and support services. This fuels two emerging problems: Firstly, service demand is expected to outweigh provision. Secondly, the stroke care pathway stops at community level, leaving patients with ‘unmet needs’, and feeling ‘abandoned’.
A solution: Self-management (SM) could potentially eradicate the above problems as providing patients with a SM program (SMP) would give patients the skills to support themselves and has the potential to increase self-efficacy, which in turn may reduce feelings of abandonment that individuals experience after discharge. Although we know self-management can be successfully taught to stroke survivors on a one-to-one basis with many benefits, there is no work looking at SM and the impact it could have on improving transition through services. Furthermore, there is little, if any, literature detailing patient views on delivery mechanisms for SMPs.
Aims: 1.To investigate patient experience of service transition through the stroke pathway and discharge from each service. 2. To investigate patient views on how effective SMPs would be in both smoothing the transition through the stroke pathway and reducing feelings of abandonment and ill preparation when rehabilitation ceases.
Research Questions: 1. How do patients experience service transition when no SMP is in place? 2. How do patients think this could be improved? 3. What do patients think of SMPs as a concept? 4. Do patients feel that SMPs would improve the transition between services?
Plan of Research: Using the Sobell Stroke Database 10 patients will be recruited. A qualitative approach will be used, incorporating a semi-structured interview which is expected to last no longer than one hour. Interviews will analysed using the grounded theory method.REC name
London - Queen Square Research Ethics Committee
REC reference
13/LO/1412
Date of REC Opinion
14 Nov 2013
REC opinion
Further Information Favourable Opinion