SEISMIC SHIFT: Evaluating PPIE to Improve MLTC Research

  • Research type

    Research Study

  • Full title

    SEISMIC SHIFT: Exploring and Evaluating PPIE to Improve MLTC Research and Create Best Practice

  • IRAS ID

    367286

  • Contact name

    Anja Maier

  • Contact email

    anja.maier@strath.ac.uk

  • Sponsor organisation

    University of Strathclyde

  • Duration of Study in the UK

    4 years, 2 months, 30 days

  • Research summary

    SEISMIC SHIFT is a five-year UK research programme made up of three interconnected workstreams and around ten individual projects. The programme focuses on improving care for people living with multiple long-term conditions (MLTCs) by addressing the symptoms and challenges that have the greatest impact on daily life.

    A central feature of SEISMIC SHIFT is its commitment to Patient and Public Involvement and Engagement (PPIE) across all stages of the programme to ensure that the research remains relevant, meaningful and grounded in real-world experiences. This will involve working in partnership with people who have lived experience of MLTCs, as well as carers, members of the public and representatives from health, community and voluntary organisations.

    This study will evaluate how PPIE is implemented across the SEISMIC SHIFT programme. It will explore how involvement is planned and delivered, what works well and where there may be opportunities for improvement. The study will also examine how PPIE influences research processes and decisions and the extent to which it shapes the direction and impact of the programme.

    Importantly, the study will gather feedback from people involved in PPIE activities to understand their experiences, including what supports meaningful involvement and what challenges may be encountered.

    By bringing together these insights, the study will develop a practical, evidence-informed model of best practice for PPIE in complex, multi-project research programmes. This will support future research and service development to involve patients and the public in ways that are inclusive, effective and impactful.

  • REC name

    London - City & East Research Ethics Committee

  • REC reference

    26/PR/0434

  • Date of REC Opinion

    15 Apr 2026

  • REC opinion

    Favourable Opinion