RUSH1F

• Research type

  Research Study

• Full title

  Rate of Progression of PCDH15-Related Retinal Degeneration in Usher Syndrome 1F (RUSH1F)

• IRAS ID

  306351

• Contact name

  Michel Michaelides

• Contact email

  michel.michaelides@nhs.net

• Sponsor organisation

  Jaeb Center for Health Research (JCHR)

• Clinicaltrials.gov Identifier

  NCT04765345

• Clinicaltrials.gov Identifier

  N/A, N/A

• Duration of Study in the UK

  4 years, 6 months, 1 days

• Research summary

  The purpose of this study is to collect information about people with retinal degeneration caused by mutations in the PCDH15 gene of their DNA. We hope to learn about the traits of these people and study what happens to their eyes and vision over time. We hope to use this information to design studies for future treatments of people with PCDH15- related retinal degeneration.
  

• REC name

  South Central - Berkshire B Research Ethics Committee

• REC reference

  21/SC/0404

• Date of REC Opinion

  14 Jan 2022

• REC opinion

  Further Information Favourable Opinion