Role of service users and the public in research
Research type
Research Study
Full title
Patient and public involvement as practice of knowledge transfer - a comparative ethnographic study
IRAS ID
186094
Contact name
Constantina Papoulias
Contact email
Sponsor organisation
Research Management, King's College, London
Duration of Study in the UK
1 years, 5 months, 1 days
Research summary
The study will explore how involving service users and the public in research (a practice known as 'patient and public involvement' or PPI) can contribute to tailoring treatments and services for a specific population. We will use qualitative methods to observe how PPI works in two projects funded by the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) in South London. We will focus on research aiming to improve the health and well-being of people with long term conditions by providing tools for the self-management of these conditions: type 1 diabetes and psychosis. We chose the projects because they use similar ways of involving service users and the public: they both invite participants of a preliminary phase of the study to become part of the research team in a subsequent phase, so that their experience of the piloting of a new service or treatment can help refine it and increase the likelihood of successful implementation.
REC name
East of Scotland Research Ethics Service REC 2
REC reference
15/ES/0162
Date of REC Opinion
27 Oct 2015
REC opinion
Further Information Favourable Opinion