retrospective-prospective cohort study to observe Safinamide safety

  • Research type

    Research Study

  • Full title

    European multicenter retrospective-prospective cohort study to observe Safinamide safety profile and pattern of use in clinical practice during the first postcommercialization phase–Study Z7219N02

  • IRAS ID

    140502

  • Contact name

    Camille Carroll

  • Contact email

    camille.carroll@plymouth.ac.uk

  • Sponsor organisation

    Zambon S.p.A.

  • Duration of Study in the UK

    3 years, 0 months, 1 days

  • Research summary

    Safinamide is an EU market product (2015), it is indicated as add-on therapy for the treatment of patients with idiopathic Parkinson’s Disease (PD). During the initial marketing authorization procedure, at day 180 the European Medicines Agency (EMA) recommended to the Applicant to provide additional real world data on Safinamide given the uncertainties regarding categories of patients not well represented in clinical trials, namely patients aged > 75 years and those with concomitant psychiatric conditions such as psychosis, cognitive dysfunction and depression.

    The observational study will be conducted in patients aged >18 years and with relevant concomitant conditions in relevant hospitals/NHS trust. Data will be prospectively recorded on the Study eCRF by the Investigator both by retrieving already available data from the medical charts and by interviewing the patient in order to collect information that, as per single centre practice, would not be reported in the patient’s medical chart.

    The Investigator will be asked to report all the Adverse Events (serious or not, related or not to Safinamide) and pregnancy cases occurred during the observation period of which he/she becomes aware.

    Data will be collected for 12 months after start of participant’s treatment with Safinamide.

  • REC name

    North West - Haydock Research Ethics Committee

  • REC reference

    16/NW/0600

  • Date of REC Opinion

    16 Aug 2016

  • REC opinion

    Favourable Opinion