Research in Care Homes – Issues of participation and citizenship.
Research type
Research Study
Full title
Research in Care Homes – Issues of participation and citizenship. Getting involved and being included for people with dementia residing in a Care home.
IRAS ID
155673
Contact name
Emma Law
Contact email
Duration of Study in the UK
1 years, 11 months, 18 days
Research summary
There is an increasing emphasis on encouraging Care Homes to participate in research. This is a two phase study, of which the first phase, involving interviews with Care Home researchers and a survey to Care Home managers has been completed. The second phase, which this application describes in full, aims to be an exploratory work examining issues for those people with dementia, in a Care Home setting of: participation in research; citizenship; the human rights agenda; inclusion and exclusion; the assumptions of capacity, consent and ethical issues; workforce support and conducting research in a Care Home setting. This will be guided by the preliminary findings of the survey and key informant interviews of researchers from phase 1. It will involve the use of focus groups; direct observation; semi-structured interviews with staff, carers and residents who have and have not been involved in research.
Three Care Homes are included to allow comparison. Residents, who have been excluded from research because their levels of cognition were deemed to be too severe to participate, will be included in this research. A mixed methods approach to data collection and analysis will be used.
The importance of this work for researchers is that it will clarify some of the considerations about recruiting and maintaining people with dementia in a research project while accounting for people’s individual rights as citizens and having a greater understanding of these issues of participation and citizenship to inform and enhance their own research conduct and findings in Care Home settings with this population.REC name
Scotland A REC
REC reference
14/SS/1076
Date of REC Opinion
7 Nov 2014
REC opinion
Further Information Favourable Opinion