Reproductive issues in SA female patients with IBD - Version 1
Research type
Research Study
Full title
Re: Reproductive issues in female patients with Inflammatory Bowel Disease: The lived experiences of women of South Asian Background.(Version 1)
IRAS ID
201308
Contact name
Angeliki Ford
Contact email
Sponsor organisation
University of Wolverhampton
Duration of Study in the UK
1 years, 7 months, 23 days
Research summary
Version 1
Inflammatory Bowel Disease (IBD) is an inflammatory condition of the small intestine and colon. IBD is associated with problems with fertility and voluntary childlessness. Some women choose not to have children due to anxiety of the effects of IBD on pregnancy and childbirth. Childlessness in British South Asian (SA) communities is highly stigmatising, resulting in social and emotional problems as well as increased vulnerability to threats within family.The study objectives are to explore how female SA IBD patients experience childlessness and parenthood in relation to IBD. The aim is to understand the interaction of their culture with their decision or ability to have children or not, and how we can use this understanding to promote awareness of their psychological and cultural needs and inform the design of services.
Data will be collected through individual unstructured interviews with probing questions. The data will be analysed using ethnography. Keeping with the ethnographic tradition, reflexive data will be collected about the research process and encounter as forms of observation made about my part in the performance of data collection (Whitehead, 2005). Participants will be recruited from and interviewed at the IBD clinic at New Cross Hospital, Wolverhampton. Patients who are severely ill will be excluded. Patients with and without children will be included. Participants will be approached to take part in an audio recorded interview and they will be informed of their right to withdraw before the data analysis has commenced. Approximately 15 participants will be interviewed. Debriefing will take place after the end of the study.
Findings from this study could help inform the delivery of specialised and SA culturally sensitive psychological interventions provided within IBD services or NHS psychological services. The study will last a maximum of two years but participants will only take part in the individual interviews.REC name
West Midlands - South Birmingham Research Ethics Committee
REC reference
16/WM/0410
Date of REC Opinion
2 Nov 2016
REC opinion
Further Information Favourable Opinion