Record-keeping in Inflammatory Bowel Disease
Research type
Research Study
Full title
Record-keeping in Inflammatory Bowel Disease: current practice and motivations for collecting structured data
IRAS ID
235067
Contact name
Keith Bodger
Contact email
Sponsor organisation
University of Liverpool
Clinicaltrials.gov Identifier
1114/18, Aintree University Hospital R&D
Duration of Study in the UK
1 years, 2 months, 31 days
Research summary
Electronic patient records (EPRs) allow collection of digital health information primarily supporting clinical care but this data could also be potentially used in clinical trials and outcomes research. The adoption of EPR systems in NHS hospitals has been slow and there are wide variations in the availability, functionality and maturity of digital records. Current EPR systems are fragmented and lack interoperability as well as standardised outcome sets to be captured for specific conditions.
This PhD project will explore the collection of structured clinical information. It will have a particular focus on outcomes assessment and outcome measures during patient-physician encounters, and will use Inflammatory Bowel Disease (IBD) clinic consultations as examples of information capture at point-of-care. The aim of the project is to explore the possible incentives, motivations and benefits of collecting structured digital information from the clinicians’ perspective and identify ways to address technical and human barriers to embedding the digital capture into routine practice. The project will include direct ethnographic observation, review of medical records, surveys and interviews with front-line hospital teams in an outpatient setting, in order to inform evolution of future EPRs.
REC name
South Central - Oxford C Research Ethics Committee
REC reference
18/SC/0232
Date of REC Opinion
16 Apr 2018
REC opinion
Favourable Opinion