Quality of life for people living with early stage dementia. v1
Research type
Research Study
Full title
Quality of life for people living with early stage dementia from the perspectives of the patient, healthcare professionals’and carers’.
IRAS ID
217686
Contact name
Danielle Bowden
Contact email
Sponsor organisation
Staffordshire University
Duration of Study in the UK
1 years, 1 months, 29 days
Research summary
Dementia is a progressive syndrome which can leave people experiencing difficulties with aspects of their lives, such as managing daily life activities and thus affecting their Quality of Life. Quality of Life is the general wellbeing of a person. This study will explore the viewpoints of people living with dementia, their carers’ and healthcare professionals working with people living with dementia by using Q- methodology.
Q-methodology requires people to sort through a set of statements on a topic and place the statements on a grid in order of importance. The study will be recruiting participants, healthcare professionals, carers and people living with dementia who have received a diagnosis of mild/moderate dementia in the last 12 months.
Study participation will require participants to sort through statements about what they think good Quality of Life for people living with dementia is. They will sort the statements that are written on cards in an order of importance to them and then place them on a grid. This is expected to take approximately 45 minutes to complete. This can take place at the patient’s home, the University of Staffordshire or an NHS clinic where they usually attend their appointments. The healthcare professional can complete the task at work or at the University.
The study data will be analysed using statistical analysis software. A sample of size 15-20 people will be recruited.
This study will be helpful to professionals working with people who live with dementia to allow them to understand the subjective viewpoints and values of Quality of Life from differing perspectives and to preserve well-being in the early stages of the condition. It will allow for comments on clinical pathways and make comment on the card sorting method as a clinical tool to subjectively measure Quality of Life for people living with dementia.
REC name
North East - Tyne & Wear South Research Ethics Committee
REC reference
17/NE/0105
Date of REC Opinion
12 Apr 2017
REC opinion
Further Information Favourable Opinion