Quality of Care and Treatment in Intestinal Failure
Research type
Research Study
Full title
What does “quality of care and treatment” mean for people with intestinal failure?
IRAS ID
246174
Contact name
Naomi Farrington
Contact email
Sponsor organisation
University of Southampton
Clinicaltrials.gov Identifier
RHM HOSO258, Local NHS Project Reference
Duration of Study in the UK
0 years, 10 months, 31 days
Research summary
Intestinal failure (IF) is a medical condition that makes it difficult for people to get nutrients and fluid from food and drink. People with IF need to be given the nutrients and fluids they need directly into their veins. The care of these people is provided at a few hospital trusts offering these specialist services. The opinion of people with IF who receive the specialist service is an important part of finding out if the service provides good care and treatment. However, there isn't an easy way to measure this and there has not been much research in this area. This study aims to explore what good quality of care and treatment means to people with IF.
The researcher will interview up to 20 people with IF so they can talk about their views. Participants will be adults at home on intravenous nutrition who reside in the UK. An interview guide has been developed with people with IF who have helped to design the study. People who agree to take part in the study, once it has been fully explained to them, will be interviewed face-to-face in a place convenient for them. The interviews will be recorded and then a written copy of the interview made by the researcher. The researcher will then review all the interviews to find out the main ideas about what people with IF think is a good standard of care and treatment.
REC name
South Central - Hampshire A Research Ethics Committee
REC reference
19/SC/0291
Date of REC Opinion
20 Jun 2019
REC opinion
Favourable Opinion