Psychosocial outcomes and readiness for transition in JIA
Research type
Research Study
Full title
Describing relationships between psychosocial outcomes and readiness for transition in adolescent and young adult patients with Juvenile Idiopathic Arthritis - a pilot study
IRAS ID
212352
Contact name
Daniel P Hawley
Contact email
Sponsor organisation
Sheffield Childrens NHS Foundation Trust
Duration of Study in the UK
0 years, 8 months, 30 days
Research summary
There is little research examining outcomes for adolescents and young adults with juvenile idiopathic arthritis (JIA), in terms of their mental health and factors such as anxiety, depression and social support (psychosocial outcomes). These factors are likely to impact on a young person's readiness to transition from paediatric to adult health services. We propose a pilot study to obtain data from questionnaire measures covering a range of psychosocial factors including a 'readiness for transition' measure. We proposed a range of 19 standard questionnaire measures to representatives from the national consumer group (a group of patients with rheumatological conditions including young adults) and asked them to prioritise (in terms of relevence and acceptability) which measures are included in the study. We used their feedback to select the measures included in the study questionnaire which takes approximately 30 minutes to complete.
The study will be undertaken in the Sheffield rheumatology service which has an established transition pathway between paediatric and adult services. The primary aim of the study is to describe the relationship between anxiety and transition readiness in adolescent and young adult patients, aged 10-25 years, with JIA.
Thirty participants at each site (paediatric and adult rheumatology services) will be included in the study. At the paediatric site, young people aged 10-16 years, together with their parents/carer(s) will be invited to complete the questionnaire measures; At the adult site, young adult patients aged 16-25 years will be invited to participate. An experienced psychology researcher will be available whilst participants complete the questionnaire measures, which we anticipate will occur when they attend routine rheumatology clinic appointments.
The results from this research will be important in better understanding how psychosocial factors affect an individuals readiness for transition. We hope this research will inform further work to help target psychological interventions in this group of patients.
REC name
Yorkshire & The Humber - Bradford Leeds Research Ethics Committee
REC reference
16/YH/0466
Date of REC Opinion
24 Jan 2017
REC opinion
Further Information Favourable Opinion