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Psychometric properties of EDQ among women living with HIV in the UK

  • Research type

    Research Study

  • Full title

    Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: A self-reported repeated measurement study



  • Contact name

    Darren Andrew Brown

  • Contact email

  • Sponsor organisation

    Chelsea and Westminster Hospital NHS Foundation Trust

  • Identifier

    BHIVA/5020/2020/Brown, Funders Reference

  • Duration of Study in the UK

    1 years, 0 months, 1 days

  • Research summary

    With effective treatments, HIV is now considered a chronic and episodic health condition. As people live longer with chronic HIV infection, they are susceptible to health conditions arising from the underlying infection, potential side effects of treatments, and ageing, resulting in increasingly more prevalent multi-morbidity. The presence of any conditions, symptoms, or challenges, can create physical, mental, cognitive, and social health-related challenges that are conceptualised as disability.

    Disability is an increasingly important health-related outcome to consider as more people age with HIV and multi-morbidity. Measuring disability in the context of HIV is important to determine the prevalence of disability, identify interventions that may reduce disability, to inform disability inclusive programming, and to provide person-centred HIV care.

    Accurate tools are required to measure disability. Recently a new 35-item Episodic Disability Questionnaire (EDQ) was developed for use in busy clinical and community settings. However the psychometric properties of this tool remain unknown in the UK, particularly for women living with HIV. This is important because female gender identity is an independent risk factor for disability, and women living with HIV report higher severity scores in “physical”, “mental and emotional”, “uncertainty” and “social participation” domains compared to men living with HIV. Because there are gendered considerations to disability, it is essential that the psychometric properties of the EDQ are assessment among women living with HIV in the UK.

    The primary aim of this study is to assess the measurement properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the UK, specifically internal consistency reliability, precision of measurement, construct validity, and test-retest reliability.

    The secondary aims of this study are to; 1) measure disability prevalence in the sample; 2) collect foundational disability data of women living with HIV in the UK.

  • REC name

    London - City & East Research Ethics Committee

  • REC reference


  • Date of REC Opinion

    5 Dec 2022

  • REC opinion

    Favourable Opinion

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