Psychological Risk Assessment in IBD
Research type
Research Study
Full title
Development of a Risk Assessment Questionnaire to Identify Young People with Inflammatory Bowel Disease at risk of Psychological Morbidity
IRAS ID
218248
Contact name
Alan Lobo
Contact email
Sponsor organisation
Sheffield Teaching Hospitals NHS FT
Duration of Study in the UK
3 years, 0 months, 1 days
Research summary
Inflammatory Bowel Disease (IBD) affects 1 in 350 people in the UK, and is increasing especially in young people. Around 20-30% of IBD is found in childhood with most developing symptoms in adolescence, a crucial time for identity development. Adolescence, (often defined as the ages between 16 and 21), is a key time for developing ones own identity, forming important relationships outside the family, completing education, gaining employment and becoming an autonomous individual. Living with IBD during adolesecence can have a major impact on all these elements of a young persons life.
Young people with IBD have been demonstrated to have high rates of anxiety and depression. From other long-term health conditions we know that a large number of young patients stop attending appointments once they have been transferred to adult services, and this is more likely if they have anxiety and/or depression. If young patients with IBD disengage from services it is likely to have a major impact on their health, well-being and future disease outcomes.
This aims of the study is to develop an easy to administer tool to help identify young people with IBD at risk of depression/anxiety. The ability to rapidly identify young people at risk of depression/anxiety in an outpatient setting would enable us to ensure young people access appropriate psychological interventions early. This is likely to be beneficial to their well-being but also for long term IBD treatment and self-management. Professionals working with this group will benefit from having a greater understanding of the issues young people with IBD face. It is hoped that this understanding can then inform how they provide and organise care for this group in order to better engage these young people in adult services and improve their long-term outcomes.
REC name
Yorkshire & The Humber - Sheffield Research Ethics Committee
REC reference
17/YH/0007
Date of REC Opinion
2 Feb 2017
REC opinion
Further Information Favourable Opinion