Psychological impact of congenital upper limb anomalies on parents V2
Research type
Research Study
Full title
Establishing the psychological impact of congenital upper limb anomalies on parents and families
IRAS ID
296564
Contact name
Maxim Horwitz
Contact email
Sponsor organisation
R&D Department at Chelsea and Westminster Hospital
Duration of Study in the UK
1 years, 0 months, 3 days
Research summary
This study aims to help further our understanding of the impact on parents of caring for a child with a Congenital Upper Limb Anomaly (CULA), parental wellbeing in this population and if these differ depending on parental personal experience of a congenital upper limb anomaly. Specifically, we hypothesis that parents who themselves have a CULA will differ from parents who do not have a CULA. This in turn may impact how they react to the management of their child's CULA. If so, may help clinicians identify a sub-group of CULA families that would benefit from early and focused psychological support. Given the challenges in trying to identify children at a young age who may struggle to deal psychologically with their CULA, it may instead be possible identify early parents and families which may act as a proxy marker of future patient psychological challenges. Identifying parents that would benefit from additional support may in turn have a positive impact on the child if offered appropriate support. In addition to the above, we hope to explore the current access to psychological support for parents, if and when they feel psychological screening would be most appropriate and any coping strategies that they have already developed.
REC name
London - Surrey Research Ethics Committee
REC reference
22/PR/0615
Date of REC Opinion
18 Aug 2022
REC opinion
Further Information Favourable Opinion