Providing more holistic care for adults with T2D and SMI
Research type
Research Study
Full title
Providing more holistic care for adults with type 2 diabetes and severe mental illness using experience-based co-design
IRAS ID
303267
Contact name
Alan Simpson
Contact email
Sponsor organisation
King's College London
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
0 years, 9 months, 1 days
Research summary
Adults with type 2 diabetes (T2D) and severe mental illness (SMI) are more likely to die prematurely and experience barriers in accessing services to prevent and improve illness. Understanding the experiences of those who provide and receive care is key to improving them. The experience-based co-design (EBCD) approach brings together service users and staff in a series of events to share experiences and co-design service changes with the aim of improving services and, ultimately, the care experiences of service users and staff.
This study will use the EBCD approach to work with service users and staff to jointly develop new ways of delivering services aimed at providing more holistic care for adults with T2DM and SMI. This study will be conducted across two NHS London clozapine clinics.
Observations of daily practice will be conducted in participating clinics to understand how the service works and provide insights into staff and service user perspectives. Service users, carers, and staff will be invited to participate in interviews to explore their experiences of holistic care. Service user and carer interviews will be included in a 15–20-minute film to highlight the areas of care that caused strong positive or negative feelings (‘touchpoints’). The film will then be shown to all participants at feedback events. Next, participants will discuss and agree key areas for service improvement. In mixed teams of service users, carers, and staff, participants will be invited to co-design solutions for the challenges they identified together. Lastly, a celebration event will be held to review participants’ experiences of the EBCD process and achievements made so far.
EBCD has been used in various healthcare settings, including to redesign both diabetes and mental health services. If successfully applied, the EBCD approach could create a shift in power relations among participants and help reduce health inequalities.
REC name
London - Camberwell St Giles Research Ethics Committee
REC reference
21/LO/0713
Date of REC Opinion
25 Oct 2021
REC opinion
Further Information Favourable Opinion