Prospective Follow-Up Study for Eating disorder Day treatment P-FUSED
Research type
Research Study
Full title
A prospective quantitative and qualitative follow-up study of outcomes for adolescents with restrictive eating disorders who attend day programme treatment
IRAS ID
332648
Contact name
A K Chauhan
Contact email
Sponsor organisation
South London & Maudsley NHS Foundation Trust
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
6 years, 0 months, 15 days
Research summary
Anorexia Nervosa (AN) is a life-threatening mental health disorder that usually develops in adolescence. It can last for decades and has a huge impact on quality of life and people’s ability to function, i.e. difficulties with concentration, decision making, forming and maintaining friendships, attending school/work etc.
Family therapy for anorexia nervosa (FT-AN) is the recommended treatment for young people in the UK. Despite this, some young people do not respond to treatment. In the past these young people would be admitted to inpatient hospitals (which are typically more expensive and have poorer outcomes), however day programmes (DPs) have become increasingly popular. These support recovery without separating the young person from their family, instead allowing them to continue to live at home. DPs have been shown to improve symptoms of anorexia, with effects lasting 3-12 months later. However, very few studies have looked at what happens to young people in the longer term. No investigation to date has looked specifically at how or why a day programme works. It is important for us to find out this information so that future teams looking to set up similar services know what the key aspects of a day programme are. It is also important for us to know that benefits of this day programme and not just short lived but have a long-term positive impact on young people's lives.
We will recruit 50 young people and 50 parents/carers to take part in this study. Anyone who is referred for and accepted for treatment at the Intensive Treatment Programme (ITP) of the Maudsley Centre for Child & Adolescent Eating Disorders (MCCAED), London, UK will be invited to take part in the study. If they chose to take part, young people in treatment and their parents/carers will complete questionnaires about eating disorder symptoms at the start, middle and end of treatment, and for up to 5 years after treatment has finished. We will also interview young people and their parents/carers about their experience of the day programme treatment when they have completed treatment and a year after they’ve been discharged. If someone does not want to take part, this will not affect their treatment in any way. If someone decides to take part and they change their mind at any point, they will be allowed to stop taking part. Again, this will not change the treatment they receive.
This project is fully funded by the Maudsley Centre for Child & Adolescent Eating Disorders.
REC name
Yorkshire & The Humber - Leeds East Research Ethics Committee
REC reference
24/YH/0224
Date of REC Opinion
31 Dec 2024
REC opinion
Further Information Favourable Opinion