PROM AATD

• Research type

  Research Study

• Full title

  Development of a disease specific patient reported outcome in Alpha-1 Antitrypsin deficiency (AATD)

• IRAS ID

  301816

• Contact name

  Alice M Turner

• Contact email

  a.m.turner@bham.ac.uk

• Sponsor organisation

  University of Birmingham

• Duration of Study in the UK

  1 years, 11 months, 31 days

• Research summary

  The aim of this study is to develop and produce a patient reported outcome measure (PROM) specifically aimed at patients with alpha-1 antitrypsin deficiency. It is proposed that the PROM will be utilised in both clinical care and also in clinical research trials.

• REC name

  Wales REC 4

• REC reference

  22/WA/0028

• Date of REC Opinion

  19 Jan 2022

• REC opinion

  Further Information Favourable Opinion