PROFOUND-Prostate
Research type
Research Study
Full title
Changes in functional ability and help-seeking behaviours among prostate cancer patients from resource-challenged areas in Scotland
IRAS ID
354051
Contact name
Grigorios Kotronoulas
Contact email
Sponsor organisation
NHS GG&C Research and Innovation (R&I)
Clinicaltrials.gov Identifier
researchregistry11375, Research Registry (www.researchregistry.com)
Duration of Study in the UK
1 years, 5 months, 1 days
Research summary
People with prostate cancer who live in remote or less affluent areas in Scotland are more likely to struggle with ill health. PROFOUND-Prostate will help understand how this specific population experiences changes in their wellbeing and ability to function. We will look at what helps or stops these people from deciding to get help about any health changes.
We will identify 48 eligible individuals from an NHS platform, called the Register of SHARE, as well as from NHS prostate clinics and a patient charity. We will ask participants to complete one questionnaire each week for 6 months. The questionnaire will ask the participant about their ability to function and wellbeing. Every 2 months, we will use the participant’s responses on the weekly questionnaires to create a graph and send it to the participant. The graph will show the participant how / if their wellbeing and ability to function changed in the previous 2 months. We will then schedule a short interview with the researcher. The interview will enable the participant to examine their own information on the graph and talk about how they set priorities for their health and wellbeing, how they made decisions to seek help for a health problem, and what additional support they might need to increase their wellbeing.
The graphs will help participants visualise their needs as they change. This might prompt them to take action and help them communicate any needs to support services more confidently and frequently. The interviews will enable participants to have a closer think at what prompts, helps or stops them from seeking help when they need it. We will also analyse information from this project to explore what might put these people at greater risk of poorer health, so that health and social care services in Scotland can better support them.
REC name
Wales REC 7
REC reference
25/WA/0336
Date of REC Opinion
6 Nov 2025
REC opinion
Favourable Opinion