Prioritising Outcomes iN Childhood Hearing lOss (PONCHO)
Research type
Research Study
Full title
Prioritising Outcomes iN Childhood Hearing lOss (PONCHO)
IRAS ID
238263
Contact name
Iain Bruce
Contact email
Sponsor organisation
Manchester University NHS Foundation Trust
Duration of Study in the UK
1 years, 0 months, 21 days
Research summary
Research studies examining hearing loss in children and young people look at many different things making it difficult to put the information together and find a clear answer. We are planning to develop a list of things that hearing loss studies should measure. We will recommend that all hearing loss research measures things from our list as a minimum. That list is called Core Outcome Set or COS. Using COS will enable doctors and patients to compare results from different studies and make up their mind about research much easier.
We will look for children and young people who have permanent hearing loss which is mild, moderate or severe and has not been managed surgically (i.e. patients do not have a cochlear implant). We will speak with our participants and health professionals that take care of them about what is important for this group of people. We plan to ask children and young people as well as their parents about their experience of day to day living with hearing loss. The literature gives an understanding of the challenges faced by parents receiving news of their child having a hearing loss and difficulties accessing services but much less is known about the 'lived experience’ of hearing loss of parents, children and young people. Interviews or focus groups will be used to identify topics important for patients, their parents, and professionals who take care of them. Then, we will ask patients, carers and healthcare professionals from the hearing loss field to vote on those topics to come up with the ones that are the most important for all 3 groups. At the end of the voting process we will have a Core Outcome Set for children and young people with mild to severe hearing loss.
REC name
London - London Bridge Research Ethics Committee
REC reference
18/LO/1741
Date of REC Opinion
5 Oct 2018
REC opinion
Favourable Opinion