Practices, attitudes and outcomes of patients with memory problems
Research type
Research Study
Full title
Practices, attitudes and outcomes of patients with memory problems but with no dementia diagnosis following memory clinic assessment
IRAS ID
306428
Contact name
Naji Tabet
Contact email
Sponsor organisation
University of Sussex
Duration of Study in the UK
2 years, 0 months, 1 days
Research summary
Memory problems and some degree of memory dysfunction is common in old age. Patients referred to memory clinics who do not meet criteria for dementia diagnosis are mainly diagnosed with Mild cognitive impairment, subjective cognitive impairment and age associated memory decline. Patients with these diagnoses are discharged and many are lost to follow up. The reaction, impact and outcome for these patients following diagnosis is not clearly established.
The aim of this study is to understand the attitudes, views and practices of patients with memory problems but no diagnosis of dementia immediately after memory clinic assessment and a year later. We would also like to understand how the assessment may impact the patients' lifestyle practices during the year following assessment.
In this mixed methods study, we intend to recruit patients 50 years of age and over from sites across the UK. The study is a comprised of a main study and a sub-study. The main study will the involve the completion of a baseline questionnaire measuring patients’ attitude to the diagnosis they received at the memory clinic and their future intentions and actions in relation to their health, social and lifestyle practices.in response to their diagnosis. Patients will also be invited to complete a follow-up questionnaire to identify any changes to health, social and lifestyle practices within the year after memory clinic assessment. For the sub-study, patients will be invited to take part in a semi-structured interview after memory clinic assessment and then within the year to gain a more in-depth understanding of their subjective experience of living with their diagnosis.
REC name
Wales REC 6
REC reference
21/WA/0371
Date of REC Opinion
19 Nov 2021
REC opinion
Favourable Opinion