Positive Behaviour Support Toolkit for C/YP attending hospital v1
Research type
Research Study
Full title
Co-production of an evidenced-based child-centred toolkit to increase the use of positive behavioural support (PBS) and reduce the use of restrictive practices (RP) with children with Intellectual Disability (ID)/Autistic Spectrum Condition (ASC) attending hospital
IRAS ID
293717
Contact name
Joann Kiernan
Contact email
Sponsor organisation
Edge Hill University
Duration of Study in the UK
0 years, 9 months, 3 days
Research summary
Research Summary
This study will work with children, young people, parents and health professionals to co-design a toolkit to promote the use of positive behavioural strategies (PBS) and reasonable adjustments when a child with intellectual disabilities or autistic spectrum condition attends hospital for a clinical procedure. These children can find attending for such procedures incredibly difficult and anxiety provoking and this study aims, through the co-development of an accessible and child-centred toolkit, to reduce the difficulties experienced.
This is a multi-phased qualitative project using online interviews, accessible and child-centred activity sheets, journey maps and online workshops. All phases of the project will engage with children and young people with intellectual disabilities and autistic spectrum conditions, their parents and the health professionals who care for them. The design has been informed by consultation with children, young people and families and aims to be flexible to encourage and facilitate the involvement of children and young people with intellectual disabilities and autistic spectrum disorder.
Summary of Results
The team have created a 'My Hospital Guide' designed with children, young people, parent, carers and health professionals and are currently seeking additional funding through alternative sources to complete a pilot evaluation of the resource.
We have applied for further funding to conduct an evaluation of the toll and implementation work to develop robust evidence to underpin the use of the 'My Hospital Guide'.
Dissemination will involve national networks of Children's hospitals, sharing with NHSE and publication.REC name
Wales REC 7
REC reference
21/WA/0135
Date of REC Opinion
4 May 2021
REC opinion
Favourable Opinion