Physiotherapy assessment for children with brain tumours
Research type
Research Study
Full title
A qualitative study of physiotherapy assessment of children and young people with ataxia following diagnosis of a posterior fossa brain tumour; perspectives from children, parents and physiotherapists
IRAS ID
241842
Contact name
Katherine Curtis-Tyler
Contact email
Sponsor organisation
City, University of London
Duration of Study in the UK
0 years, 7 months, 7 days
Research summary
This is a qualitative study of the experiences of physiotherapy assessment of children and young people following a diagnosis of a brain tumour, and the perspectives of their parents and physiotherapists. There is a lack of research in this area and limited suitable standardised assessments or treatment pathways. In order to establish pathways and change practice it is necessary to identify first what current experience is and what priorities are for the stakeholders.
Aim
To gain insight into the experiences of parents, children and physiotherapists on physiotherapy assessment for children with ataxia following diagnosis of a posterior fossa tumour, being treated at a single Primary Treatment Centre (PTC).
Objectives
To identify the priorities for parents, children and physiotherapists from the physiotherapy assessment process.
To identify the priorities for parents, children and physiotherapists in relation to setting goals for children following physiotherapy assessment.
To explore the similarities and differences in experience and priorities for parents, children and physiotherapists in a specific centre.
The study aims to recruit three parents of children under five years and three parents and their children aged six years to twelve years. A total sample of six physiotherapists will be approached and recruited. Data will be collected from parents and young people using one semi structured interview per participant. Interviews will last 45-60 minutes, will be audio recorded, and will be conducted at the hospital at times to suit participants. Data will be collected from physiotherapists via a focus group. This is anticipated to last 60-90 minutes. This will be audio recorded and will be conducted at the hospital at times to suit participants.
Audio recording will be transcribed verbatim and a pragmatic thematic analysis will be used to establish themes and then refine and map these themes.REC name
London - West London & GTAC Research Ethics Committee
REC reference
18/LO/0493
Date of REC Opinion
23 Apr 2018
REC opinion
Further Information Favourable Opinion