physical activity and diet in juvenile idiopathic arthritis.
Research type
Research Study
Full title
An investigation into the effect of physical activity and dietary intake in children and young people with juvenile idiopathic arthritis.
IRAS ID
275955
Contact name
Helen Dawes
Contact email
Sponsor organisation
Oxford Brookes University
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Juvenile Idiopathic Arthritis (JIA) is the most common type of arthritis in children under the age of 16. The disease and its therapeutic management can cause serious long-term complications, which affect general activities and quality of life. The lack of specific guidelines for safe physical activity and appropriate management of any nutritional deficit aiming our study to find out views and opinions about the needs of children and young people with JIA. We want to improve our knowledge about the impact of physical activity and eating habit on and we want to develop a tool to help evaluate care. Few studies targeting quality of life and wellbeing in children adolescent populations have adopted the diet and physical activity perspective or approaches, consequently, this research project will help to address this gap through:
1) Interview: to look at young people's current experiences with JIA as well as their parents/caregivers and health care professionals. Study findings will provide a snapshot of the current experiences of participants, helping to improve our knowledge about JIA, physical activity, and diet. Qualitative studies exploring people's perspectives on their experiences, when collected systematically, adds valuable depth, insight, and understanding into the issues related to JIA not possible through quantitative methodologies. This study uses a qualitative approach known as framework methodology to understand stakeholder’s experience of what helps and what hinders improving the quality of life in children and young adults with JIA. 21-30 stakeholders will be recruited in Oxford UK, to take part in individual semi-structured guided interviews lasting approximately one hour. Participant responses will be transcribed with the help of NVIVO and analysed to extract themes that will answer the research question.
2) Delphi study: which aims to develop a diet and physical activity intervention for children and young adults with JIA.REC name
South West - Cornwall & Plymouth Research Ethics Committee
REC reference
21/SW/0007
Date of REC Opinion
11 Mar 2021
REC opinion
Further Information Favourable Opinion