Phase 2b extension study to evaluate NEOD001 in Light Chain (AL)

  • Research type

    Research Study

  • Full title

    A Phase 2b Open-label Extension Study to Evaluate the Long-term Safety and Efficacy of NEOD001 in Subjects with Light Chain (AL) Amyloidosis who were previously enrolled in Study NEOD001-201 (PRONTO)

  • IRAS ID

    226880

  • Contact name

    Ashutosh Wechalekar

  • Contact email

    a.wechalekar@ucl.ac.uk

  • Sponsor organisation

    Prothena Therapeutics Limited

  • Eudract number

    2016-004664-18

  • Duration of Study in the UK

    3 years, 2 months, 1 days

  • Research summary

    Light Chain (AL) Amyloidosis is a rare disorder. With an estimated total population of 63.7 million, the overall incidence of systemic amyloidosis in England may be approximately 500 per year.

    This extension study will consider the safety and efficacy of the study drug NEOD001, an antibody that was developed to target the abnormal protein (amyloid) that causes AL amyloidosis. NEOD001 might reduce the amyloid build up and/or the damage caused by amyloid,and may improve abnormal organ function.

    This is a multicentre, Phase 2b Open-label Extension Study to Evaluate the Long-term Safety and Efficacy of NEOD001 in Subjects with Light Chain (AL) Amyloidosis who were previously enrolled in Study NEOD001-201 (EudraCT No. 2015-004318-14).

    The study will be conducted in approximately 40 sites globally and is anticipated to enroll 100 subjects. Each subject’s study participation may be up to 38 months or until the study is terminated.

  • REC name

    East of England - Cambridge South Research Ethics Committee

  • REC reference

    17/EE/0223

  • Date of REC Opinion

    8 Aug 2017

  • REC opinion

    Further Information Favourable Opinion