Perspectives of Fetal Alcohol Spectrum Disorder Diagnoses in Children
Research type
Research Study
Full title
Parent and Caregiver Perspectives of Fetal Alcohol Spectrum Disorder Diagnoses in Children.
IRAS ID
228449
Contact name
Jennifer Shields
Contact email
Sponsor organisation
NHS Ayrshire and Arran
Duration of Study in the UK
0 years, 8 months, 30 days
Research summary
This research will utilise a semi-structured interview format to ascertain perspectives of parents and caregivers around the diagnosis of fetal alcohol spectrum disorder in children.
Fetal alcohol spectrum disorder (FASD) is an umbrella term used to describe a wide range of effects arising from prenatal alcohol exposure. It is the leading cause of preventable disability in the western world; affecting approximately 3-6% of the population in the UK. Although it may not be detected at birth, FASD can become apparent later in life. Its effects include congenital abnormalities in the structure, size, growth and/or function of the brain and central nervous system, as well as difficulties with development, learning and/or behaviour.
Identification and diagnosis of affected individuals is a relatively new endeavour for Scotland, and there is a pressing need for service user and stakeholder-based research to inform and guide practice.
Of particular interest are parent/caregiver views on diagnosis. We will conduct interviews with the aim of exploring views on this topic with in order to collect qualitative data that can further inform service development. These interviews will be undertaken between Autumn 2019 and July 2020.
REC name
West of Scotland REC 5
REC reference
20/WS/0001
Date of REC Opinion
17 Dec 2019
REC opinion
Favourable Opinion