Person Centred Care as Personalisation, Participation & Responsiveness
Research type
Research Study
Full title
Multidisciplinary Person Centred Caring: Its conceptualisation and measurement through three instruments (personalisation, participation and responsiveness)
IRAS ID
160971
Contact name
Heather Strachan
Contact email
Research summary
Caring in healthcare is valued by people, healthcare professionals, and organisations. Yet there are indications that it is not practiced by all healthcare professionals, or experienced by healthcare service users, consistently. Given the growing recognition that service users’ caring experience is central to quality healthcare, and increasingly important in the 21st century, reducing this variation is necessary. To help our understanding of what influences healthcare professionals' caring capacity and how to improve service users' experience of caring requires a measure or indicator of caring so that these can be empirically studied. A review of the literature revealed a variety of definitions of caring, but no agreement on its attributes in healthcare contexts. However, there were common themes. Based on this, caring has been identified as incorporating 3 concepts: personalisation, participation and responsiveness (P,P&R). These concepts encompass those interpersonal interactions that relate to the manner in which we do things that respect the value of the person. The multidisciplinary nature of caring is confirmed by healthcare service users who value caring from all professionals. A systematic search and review of instruments to measure P,P&R concepts found none suitable. However a number of instruments contained relevant items that were used to created an item pool for 3 new instruments. The next phase of the study seeks to finalise the development of these new instruments. Focus groups will be conducted with service user representatives and healthcare professionals to rationalise the item pool. Interviews with service user representatives will further refine the instruments. A survey with focus group participants will finalise the instruments. The final phase will involve an observational survey to evaluate the psychometric properties of the instruments in a sample population of healthcare service users. Feasibility and acceptability of the instruments for the purposes of quality assurance and research will be evaluated.
REC name
East of Scotland Research Ethics Service REC 1
REC reference
14/ES/1053
Date of REC Opinion
19 Aug 2014
REC opinion
Favourable Opinion