PErson Centred Cancer Screening services (PECCS)
Research type
Research Study
Full title
Identifying the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening services (PECCS)
IRAS ID
310622
Contact name
Kate Byrnes
Contact email
Sponsor organisation
Teesside University
Clinicaltrials.gov Identifier
CRD42022331781, PROSPERO Registration number
Duration of Study in the UK
1 years, 6 months, 1 days
Research summary
Background to the research: The physical health of people with learning disabilities and people with a severe mental illness is poor when compared to the general population, leading to a reduced life expectancy in both populations [1]. One condition causing premature and preventable deaths in these populations is cancer [2]. In the UK there are three national cancer screening programmes (breast, cervical and colon) to identify the early presence of cancer, and evidence shows uptake of the three cancer screening programmes remains low [3].
Aim(s) of the research: To understand the barriers and facilitators for people with severe mental illness accessing cancer screening. The results focusing on people with a severe mental illness will be triangulated with research that focuses on people with learning disabilities to identify common barriers and facilitators across both groups, as well as population specific barriers and facilitators.
Design and methods: A mixed methods study comprising of 1) a mixed methods systematic review and 2) semi- structured interviews speaking to 36 people with severe mental illness about their cancer screening experiences. Recruiting eligible people with a diagnosed severe mental illness through NHS services, charities, and social media. Participants will be asked to have a discussion, lasting up to one hour, with a member of our research team at a place convenient to them.
Patient and public involvement: This research has been informed by services users, as well as three experts by experience who have lived experiences of mental health issues are working alongside the research team to design and conduct this research.
Dissemination: The results of the research will be used to recommend adjustments to healthcare providers and cancer screening services to ensure screening is person-centred based on the needs and preferences of people with severe mental illness or learning disabilities.
References
1. Health matters: reducing health inequalities in mental illness [Internet]. GOV.UK. 2018. Available from: https://www.gov.uk/government/publications/health-matters-reducing-health-inequalities-in-mental-illness/health-matters-reducing-health-inequalities-in-mental-illness
2. Avoidable mortality in Great Britain - Office for National Statistics [Internet]. Ons.gov.uk. 2022. Available from: https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/causesofdeath/bulletins/avoidablemortalityinenglandandwales/2020
3. Severe mental illness (SMI): inequalities in cancer screening uptake report [Internet]. GOV.UK. 2021. Available from: https://www.gov.uk/government/publications/severe-mental-illness-inequalities-in-cancer-screening-uptake/severe-mental-illness-smi-inequalities-in-cancer-screening-uptake-report
REC name
London - Riverside Research Ethics Committee
REC reference
22/PR/0793
Date of REC Opinion
18 Aug 2022
REC opinion
Further Information Favourable Opinion